Life through the eyes of a 30-something Panda Woman who happens to be Chronically Sick and Disabled.

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Fatigue with EDS-III 

Fatigue with EDS-III 

   So I’ve just completed this survey about fatigue with Ehler’s Danlos Syndrome type III (Hypermobility). I had honestly never associated my fatigue with my EDS before, it just got filled under Fibromyalgia and ME.  I was diagnosed with EDS by a genetic counsellor who’d found an abnormality in my MEFV gene and whom I’d […]

On productivity

IMG_6592.JPG

Today I have been attempting to spend more time out of bed.  After lunch I  sat at my computer and for the first time in a few years played World of Warcraft.  This is a MMPORP game where I get to a) play a panda and b) play with friends.  Friends who I didn’t know […]

I will post again soon…

I will post again soon…

… I keep promising myself that I will start blogging in earnest soon.  Its a bit like when you haven’t seen an old friend in a while and you keep meaning to meet up, catch up, but keep being so busy.   I want to tell you all (if anyone ever reads this) what it’s […]

Tribunal update

Tribunal update

So today I received another mandatory reconsideration from DWP and guess what, this time they’ve ruled in my favour so I don’t need to take them to tribunal after all. I’m guessing the two weeks worth of benefits they’ll have to pay me will cost less than the tribunal would cost them. None of the […]

“The Undateables”

“The Undateables”

So I, as a person, am single and looking. I’ve had the normal trials and tribulations of dating all my non-disabled and disabled life, and yes there are more when you’re disabled, whatever your disability may be. I am glad that television is incorporating disability more an more and in a way I am very […]

Soya bad

Soya bad

So apparently I am (still) intolerant to soya. I say still because it used to make me rather ill I’m the form of tofu. I find my revisitation to it’s ill effect strange as I can happily munch edamame til the cows come home with no problems but apparently its milk is a different story. […]

More knives (of the scalpel variety)

More knives (of the scalpel variety)

First and foremost you will hopefully be pleased to hear that Mamma Cubb’s surgery went very well and she is recovering nicely Now onto new knives… On Tuesday I saw a new (to my personal quota) consultant, Mr Alberto Isla, at Northwick Park Hospital. I was referred to him by my gastroenterologist, Professor Jay Arnold, […]

Mamma Cubb goes under the knife.

Mamma Cubb goes under the knife.

So today Mamma Cubb is having a thyroidectomy to remove a goitre. We’re currently waiting in the admissions lounge of Ward 3 South at Ealing Hospital for her to be admitted to the ward. The process of getting here has had it’s ups and downs; from a chance diagnosis to surgery on, off, postponed and […]

Hello World!

Panda Cubb

Hello! I am Panda Cubb, you can call me Panda or Cubb or whatever you fancy (as long as it’s nice :)) I suffer from a number of long term medical conditions and have decided to share my experiences with you. A quick run-down of my conditions: Fibromyalgia IBD PCOs Bipolar Disorder (Type II rapid […]

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