Life through the eyes of a 30-something Panda Woman who happens to be Chronically Sick and Disabled.

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Posts in category Fibromyalgia

I left the house!

I left the house!

Shock horror I left the house on a Sunday!  I went out into nature in my wheelchair for an hour or so.  The sun was out and it was warm, except in the shade where it was a tad nippy. It felt good to get out.  Afterwards I came home and played computer games to […]

On distractions

On distractions

Today I was in agony.  Today I didn’t want to be awake but couldn’t even nap due to pain.  Today I played World of Warcraft to distract myself and it worked for the hours I sat up to play.  This evening I am still in agony but at least I didn’t spend the day thinking […]

On Comorbidities

On Comorbidities

In medical terms Co-morbidities are illness and disorders that you have that may or may not be related and/or overlap. In medicine, co-morbidity is the presence of one or more additional disorders (or diseases) co-occurring with a primary disease or disorder; or the effect of such additional disorders or diseases. The additional disorder may also […]

Support Groups

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i must admit I was a skeptic a few years ago about support groups.  I’d been offered a place in one for psychotherapy and found the idea horrid.  When I’m suicidal the last thing I want is to be surrounded by people. After having fibromyalgia for a while someone suggested I join a Fibro support […]

It’s been a while…

It’s been a while…

…hello? Is anyone still out there? The problem with being a chronic sick and disabled blogger is just that, you’re always feeling like death, never quite want to put it into words. I went through some dark times and some lightness through the long silence. For a while I was doing permitted work and as […]

How to lose friends

How to lose friends

So illness and disability are lonely, this we know. It’s often very very hard for those around us to know how we are feeling and what we are suffering. I went to my first fibromyalgia support group this week which was a really positive experience for me. Although it’s sad to see others suffering it’s […]

Lonely in London

Lonely in London

One of the big problems with living in a vibrant City like London, particularly whilst hosting the Olympic Games, is that there are lots of wonderful things going on, experiences that others are having, that I just cannot be a part of. I cannot use public transport due to my immune system, and thus almost […]

Ever just feel so lonely?

Ever just feel so lonely?

I live with my parents and my Cat. I am very rarely alone in or out of the house and yet I feel terribly lonely. Do you remember when you were a teenager and “no-one understands me” was a daily retort? More than ever I find myself wanting to scream that at those around me. […]

The inconvenience of flares

The inconvenience of flares

So my IBD has been almost entirely in remission for many months. This was great and as I prepared to go to download festival this year the fact I am taking my own toilet seemed like a luxury convenience… …until yesterday. Oh yes my friends, during our street party to mark the Queen’s Diamond jubilee […]

The problem with painkillers

The problem with painkillers

The problem with painkillers is the catch 22… At 4am I was still not asleep. Not because I wasn’t tired but because I was in agony and couldn’t relax my body nor mind. So I took a large chunk of my daily “as needed” painkillers. tramadol 150mg arcoxia 90mg paracetamol 1g metoclopramide 20mg the upshot […]

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