Life through the eyes of a 30-something Panda Woman who happens to be Chronically Sick and Disabled.

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Monthly archives for March, 2015

Hospital days

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   Today has been a day of hospitals.  This morning I woke up earlier than I had to after a crappy night of insomnia, dragged myself downstairs, are the breakfast that Mama Cubb prepared for me and attempted to not fall asleep again.  Of course that failed and I fell asleep.  Mama kept trying to […]

The trilogy of solitudes

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   I’ve decided there are three primary types of solitude: Social solitude Mental solitude Physical solitude Social Solitude -interactions- Social solitude is basically a lack of socialising. This could be for many reasons and can wax and wane.  For instance you may have lots of friends who are simply just very busy, or a few […]

Read this, please

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   I urge you all, whether or not you have any experience with mental health to read this exceptionally candid post by Mr James Robinson.  I know this man, he is fab. A grumpy bugger at the best of times, it’s who he is, and I’m sad to say I’ve lost touch with him since we […]

On cold drinks

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    So I’ve always been a very thirsty panda.  If I’m without a drink by my side there is something wrong.  I barely ever touch alcohols (maybe a few times a year) so it’s not too unhealthy but I have a big soft spot for fizzy drinks.  Always the “diet” variety and normally zero […]

The Truth About Sugar & Chronic Illness

The Truth About Sugar & Chronic Illness

So I’ve been trying to reduce my sweet tooth too.  I’m still a Pepsi Max addict but I alternate with tea, coffee, water and soda with lime as well now, all unsweetened, not even with sweeteners as I get enough of that in Pepsi (I.e. too much).  I’ve also switched to dark chocolate and limit […]

On Boobies

On Boobies

I love boobs. I’m a woman with boobs. I’m a bisexual woman who likes other women’s boobs. I don’t like bras. Wearing clothes with Fibromyalgia is not fun anyway. I don’t like the feel of pretty much any fabric against my skin. When at home I wear satin nightwear, cotton pants and sleep in satin […]

Fatigue with EDS-III 

Fatigue with EDS-III 

   So I’ve just completed this survey about fatigue with Ehler’s Danlos Syndrome type III (Hypermobility). I had honestly never associated my fatigue with my EDS before, it just got filled under Fibromyalgia and ME.  I was diagnosed with EDS by a genetic counsellor who’d found an abnormality in my MEFV gene and whom I’d […]

On naps

Mao Mao is not feeling particularly energetic

  Due to trying to be productive (playing WoW mostly but it’s something) I’ve gone without my afternoon naps for a few days… …today I caved and I’m struggling to stay awake now, I so want to go to bed but have at least an hour to go until I can take my bed-time meds. […]

MECFS Blog: More on GET. Graded Exercise For Dummies or GET 101

MECFS Blog: More on GET. Graded Exercise For Dummies or GET 101

I found this post really informative and I hope you’ll enjoy it too. I’ve wanted to write this post for a while. Here goes! I’ve been doing Graded Exercise Therapy (GET) via an NHS ME Clinic since September 2014.  Before I started, I was aware of the issues around GET. If you click on the […]

I left the house!

I left the house!

Shock horror I left the house on a Sunday!  I went out into nature in my wheelchair for an hour or so.  The sun was out and it was warm, except in the shade where it was a tad nippy. It felt good to get out.  Afterwards I came home and played computer games to […]

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